I was never against vaccines, all my four kids are vaccinated. I just didn’t want the COVID vaccine. I didn’t believe in a vaccine that has no long-term studies, but due to the mainstream narrative, peer pressure and family, I was told that’s what I must do to keep my family safe.
I had my Pfizer vaccine on the 15 September 2021. By that night I was experiencing flu-like symptoms, chills, fever and so on, which lasted two days. On 17 September 2021 I started experiencing tremors in my left arm, the arm I had the vaccine in. It was fine if I was using my hand but if I was relaxed the tremors would be constant throughout the day and have not stopped since.
I rang the doctor but because I’m in a regional area I couldn’t get in for weeks, so they cancelled the second vaccination appointment so I could see the doctor first. On the day I was due for the vaccination, three weeks after my first, I experienced my first seizure. I was conscious the whole time and partly responsive, according to my partner, but I don’t remember anything at all, just being in the hospital.
My partner was the one who rang the ambulance, and they came and took me to hospital. While I was in emergency, they did bloods tests, blood pressure, ECG and everything came back fine. They said the seizure would be due to stress and anxiety.
By this stage my whole body is in a tremor and even though I was in the condition I was in, they sent me home at 3am. My home is a 30 minute drive away. I was without a car because I couldn’t drive and my husband was stuck at home with four kids who were asleep and there I was, out on the street in pyjamas, with no shoes and just a phone. Luckily, I had a friend close by who was able to pick me up and I ended up staying at her place for the night.
For the entire next day my whole body was in a tremor. I fell asleep that night literally rocking. I couldn’t control myself. The following day, 8 October 2021, my body was in a severe tremor and I had to get my friend to take me back to the hospital.
I told them what had happened and why I was there, because of the effect of the vaccine. The nurse said to me that she only sees this from girls who have been taking drugs at festivals, implying that I wasn’t legitimate. I argued, “What about these people?” and showed her some of the injured from Instagram. They had nothing to say except it was safe and handed me over to the doctor in charge.
The doctor ran some physical tests, checking how my muscles worked, my walking and that kind of thing, and I mentioned that I thought this was was from the vaccine. She said, “No! it’s definitely not. The vaccine is safe”. She then said to me, “What do you want me to do?” I said I wanted a CT scan, an MRI and a referral to a neurologist.
While waiting for the MRI the next day, I had a seizure in the waiting room, so they shifted me into Emergency where I saw another patient with chest pain from the AstraZeneca vaccine. The doctor who treated me was so rude and unhelpful. Every time I brought up the vaccine, he would cut me off and talk over the top of me. He said they were non-epileptic seizures and I was just stressed and need to hand the kids off to someone else for a while, take some Valium and just chill out. He then said that I couldn’t have the MRI that day because I’d had the dissociative seizure. They put me in a day ward for a couple hours and while I was in the bed, I called up the hospital I was in and put in a complaint about the way I was treated only to find out he was the head doctor of Emergency for the hospital. I demanded them to give me an MRI. I said I wouldn’t leave without it. So, they gave me an MRI, the results came back normal. They discharged me and the seizures continued daily for the next week.
I couldn’t get into a neurologist. There was a three to six month wait in my area. I ended up having eight seizures within half an hour, the ambulance came and they were just telling me to stop and I couldn’t. They kept persisting and tried to make me walk. I just remember feeling like they were treating me so harshly, I was heartbroken. The next day we drove to Sydney where I was able to see a doctor who gave me a six months exemption for the second vaccination. He referred me to a neurologist, which cost me a few hundred dollars, only for him to tell me it was all in my head.
So, I went back to the same doctor and he was quite helpful, and sent me to the Prince of Wales Hospital. They put me in the neurological ward for five days. They did a video EEG, which showed no epileptic form, but it showed slow brain waves. They then kept me awake for 24 hours so I could do a sleep deprived EEG and I still had the same abnormality. They suggested I had mild encephalopathy.
They discharged me with Functional Neurological Disorder (FND) and mild encephalopathy and said now that you know it’s nothing serious, your symptoms should just stop. They told me to stop documenting and recording things because they said I was too focussed on it.
Since then, my symptoms have increased. I like to call them exhaustion waves and what happens is my mind is racing but my body shuts down and almost goes to sleep due to exhaustion. Kind of like shorting out an electric circuit, but I’m fully conscious. I have tremors daily and they vary from full body tremors to just separate limbs, mainly in my left arm. I still experience tingly feelings and numbness as well as different types of dissociative seizures; focal aware, absent and the one that looks like a tonic-clonic seizure.
I have bruises popping up all over my body, sore kidneys, sharp pains where my spine connects to the bottom of my skull and full-on migraines. The veins on my temples are visibly swelling and I get sensory overload. Visually I have disturbances and I must wear sunglasses all the time. I can’t handle a lot of noise. I can’t deal with extreme temperatures, hot or cold, and I can’t think properly. I couldn’t even spell my name the other day and there have been times where I’m eating and forget that I’m eating. When I try and think about stuff too much, I have a seizure, my hand puffs up and gets hot and covered in rashes. I get heart palpitations, heavy chest pains and chronic fatigue.
The last time I was in hospital was on the 4 January 2022, things were increasingly getting worse. They just told me it’s my FND and completely dismissed any of my concerns.