I’m 48 and a mother to twin boys and a daughter who are all young adults. Prior to having the vaccine I was working part time. I was exercising regularly and living a very healthy lifestyle. About 14 years ago I had dislocated discs in my back and I had my gall bladder removed about 10 years ago. The only issue it caused me was to be lactose intolerant but even so, I am able to take an enzyme before consuming dairy and I am fine. None of these issues have anything to do with what I have been experiencing since getting the COVID vaccine. I would also like to note that one of my teeth broke two months before I got vaccinated. The dentist said it broke the wrong way, so they cut some of my gum out. I ended up with an infection which was cleared with antibiotics. When the crown was ready to be put in, he used a cement that he hadn’t used before and it didn’t set so he had to remove everything again. It caused trigeminal neuralgia which was treated with steroids which started to help. But I had to stop this two weeks before having the vaccine and he told me I could continue the treatment afterwards.
I got the COVID vaccine because my GP and specialists recommended I should get it because it was of great importance. I’d had vaccinations throughout my life and never had any reactions, so I never thought it was going to be a problem. I had the first vaccination on the 21st June 2021 in my left arm. Immediately my arm got sore and within about five hours I started feeling like I had flu symptoms. My body was aching. I woke up the next day and I was still feeling achy, so I called Telehealth. I told them I’d just had the COVID vaccine
and described the symptoms I had. They said it was normal and to take Panadol and Nurofen and if it got worse, to go and see my GP.
A few days later the flu symptoms stopped but I started getting new symptoms. My face was very sore to touch. I had a strange sensation, mostly on the left side, that felt like someone was pulling the skin off my face and punching me at the same time. I was struggling to digest food and I was getting waves of severe stomach pains. Every time I ate it felt like my stomach was cramping up. I went back to my GP. She already knew that I’d had the COVID vaccine but wasn’t putting two and two together. She told me I had to go on a special diet of white, bland food. I stayed on the diet for one week, but nothing improved, so I went back to her. She referred me for an ultra sound, blood test and sent me to a gastroenterologist who already knew me.
The ultrasound and the bloods came back clear. I notified the gastroenterologist that I had the vaccination, but he also didn’t put two and two together. He was not happy to see that I had lost a lot of weight. He put me on Somac but I wasn’t able to tolerate it. It was to the point that it had me in tears. I’ve never had a problem with Somac before. I called in to let him know and he apologised and took me off it. The damage had been done though. I was in extreme pain for 24 hours after taking the Somac. It felt like my body was on fire and it didn’t matter what medication I took, they all made it worse.
I returned to the gastroenterologist and he arranged for an endoscopy and colonoscopy. The results came back clear, but he was genuinely worried for me and wanted to do more tests. He explained that I had to swallow a tablet that had a camera on it so he would be able to monitor what was happening in my digestive tract throughout the day. The result was fine. Everything I had been tested for came back clear. Still at this stage I hadn’t quite made the connection that this probably was from the COVID vaccine. It was nearing the time of my second vaccination and my GP and gastroenterologist both said that it was important for me to get it even though I was still extremely unwell. I genuinely believe that my specialist and GP didn’t realise that this was from the vaccine. I’ve had a good relationship with them for many years.
I went ahead and got the second vaccination on the 12th July 2021 in my left arm again. A few hours later, I felt very unwell. My head was burning and felt like someone holding a fire torch to my skull and the left side of my face in particular. It was unbearable and still to this day it’s the same. It is nothing less than a nightmare for me. I started to feel dizzy and weak. All I wanted to do that night was go to bed.
I woke up the next morning and went straight to my GP. It was then that I said I thought it was because of the vaccine but my GP still didn’t know and she referred me to a neurologist and an immunologist. I wasn’t able to get in for a few days so I had no option but to bear the pain and I still wasn’t able to tolerate any medication, so it was hell.
Once I got in to see the neurologist he knew straight away that this was from the vaccine and sent me off for MRI and blood tests. I saw the Immunologist a couple days after and he told me it might be a reaction to polyethylene glycol that is in the vaccine. My GP was trying to work with the immunologist to say I should have some infusions to boost my immune system but he decided that he wasn’t going to do it and that I should go back to the neurologist and compound the medication I needed without the polyethylene glycol. But even with the compounding my body wouldn’t tolerate any medication at all.
They tried to give me two different types of oral steroids, Endep, Lyrica, Endone and CBD oil. I can’t take anything. They then gave me a steroid injection in 2 spots in my head to try and stop the inflammation and pain in my head, but it didn’t work either. The doctors said to give it a week for the medication to start working but immediately it did the opposite and caused me painful symptoms which were pins and needles on my face, my nose, and I could feel it inside my head burning all over.
I was getting nowhere with my doctors, and still to this day everyone is clueless. I have a long list of new doctors and specialists who are all very nice and willing to help, but no one can find out what is happening to me. A number of the doctors have even told me that there are loads of people just like me and there’s a three month waiting list because of how many people are injured by the vaccine. I also want to make clear that I’m am extremely grateful for the service these professionals have been delivering to me. My pain specialist even told me that she will go out of her way to make sure I never get one of these vaccinations again. They are all caring people and they want to help, but there is not enough information for them to know how to help people like myself.
I got IVIG (Intravenous Immune Globulin) 8 days ago. I had two treatments and I didn’t make it to the third because of the side effects. I started vomiting, I had a high temperature, trembling and stabbing kidney pains. The doctors want to talk about the situation I’m in between the lot of them because they are all very concerned and unsure of what is happening to me.
Currently I’m still experiencing extreme burning pains in the head and face. My legs are getting weak to the point it’s very hard to walk. My hands are weak to point that things are falling out my hands. I have a restricted clean organic diet because I can’t handle anything processed and my body responds just like it does to the medications. I also need to mention that since the 1st, I have had a rash on my chest which can be itchy in waves but because of my medication problems I cannot treat it properly. I have constant headaches, low blood pressure and a fast heartbeat.
I’m extremely lucky to have a supportive loving family that does everything for me.